Pacing for Parkinson's is often asked what happens with the money we raise each year. We are always happy to answer more specific questions, but this page is intended to be a clear expression of the ways the money our community raises and donates helps Parkinson's patients, their families, and the work of the Johns Hopkins Parkinson's Disesase and Movement Disorder Center.

100% of funds raised go to support the research, education/outreach, and clinical efforts of Johns Hopkins Medicine, with 80% of all funds directed to these initiatives within the Parkinson’s Disease and Movement Disorders Center at Johns Hopkins. The other 20% is earmarked to support broader patient care, education and discovery initiatives, like basic science research that is central to the advancement of knowledge in all disciplines of medicine, the training of the next generation of care providers and researchers, and ensuring facilities are comfortable for patients and their families.

Year-to-year, there’s no exact formula for how P4P funds are allotted to each category – it all depends on the requests made of the PDMD Center from community partners as well as the promising research and patient care projects that dynamically emerge. The decisions are made by the PDMD Center care team as a group, and are focused on projects that are sustainable and have the potential to improve the lives of those with PD, as well as that of their caregivers. In the last year, Pacing for Parkinson's funds have supported projects at Johns Hopkins and beyond, including:
  • a Rock Steady Boxing program in Harford County;
  • the ParkinSonics, a weekly Parkinson's choral group (read our recent feature on this group here);
  • a Parkinson's Exercise Program in Lutherville-Timonium;
  • monthly support groups, an annual patient-provider symposium, and regional programs to educate others in the movement disorders community;
  • Guitar-PD, a controlled, delay-start clinical trial of twice-weekly guitar lessons to evaluate the impact of instruction on hand dexterity, mood, cognition, and quality of life; and
  • the creation of a database of videos, biological samples, etc… from people with cervical, focal, and generalized (idiopathic) dystonia, and inquiry into dystonias of the eye.
If you have questions or would like more information, please don't hesitate to contact us at pacing4parkinsons@gmail.com.